Effective date: April 21, 2020
The COVID-19 RESEARCH DATABASE (the “Research Database”) is a free resource open to the global research and public health community that has been created by Datavant, Inc. (“Datavant”) and its Research Database partners in an attempt to provide real-world data to individuals conducting academic, scientific, and medical research and public health activities concerning COVID-19.
Information We Collect
Personally Identifiable Information
We collect and store Personally Identifiable Information that you provide voluntarily when using the Services. Personally Identifiable Information is information that can identify you as a specific individual, such as your full name, postal address, email address, and/or telephone number. For example, you might provide us personally identifiable information by submitting an application for admission to use the Research Database or by emailing us. You are responsible for providing accurate and complete information when you provide such information to us.
Personally Identifiable Information does not include de-identified, aggregated, or statistical information from which identification of you cannot be done.
De-identified, Aggregated, and Statistical Information
When you visit any page on this Website or via the Research Database, we or our contracted service providers may use a program that monitors and evaluates the traffic. It automatically records every visitor’s host, domain name, pages visited, length of user session, browser type, and/or IP address. This information does not contain Personally Identifiable Information. We use this information to find out how many people visit the Services to determine the areas of greatest interest on the Services and to make improvements to the Services.
We may also collect data by using pixel tags, web beacons, clear GIFs or similar means (collectively, pixel tags) that allow us to know when you visit this Website or use the Services.Through pixel tags, we obtain non-personally identifiable information or statistical information (i.e., your IP address, the areas of this Website you visit, your operating system, your browser version and the URL you came from), which can be used to enhance your experience and, when aggregated with other visitor data, to understand traffic patterns on the Services.
How We Use Your Personally Identifiable Information
We may use your Personally Identifiable Information received through this Website to: reviewing and possibly approving your study submission approval, and, if approved, provisioning access to the research database and communicating with you regarding study publication
- Review your application for use of the Research Database
- Contact you in connection with your application for access to or subsequent use of the Research Database
- Respond to questions or inquiries you have about the Services
- Provide you with access to the Services
- Communicate with you regarding the publication of the study you are conducting through your use of the Services
- Improve this Website and the Research Database
- Customize the content and/or format of the pages you visit
- Ask you to participate in brief surveys; and/or
- Generate aggregate statistical studies and conduct research related to the Services and the use of this Website.
Disclosure of your Personally Identifiable Information
We may also disclose Personally Identifiable Information collected through the use of these Services in accordance with applicable law, to assert or defend our rights and property, to prevent harm to others, or in response to legal processes such as subpoenas.
Because de-identified, aggregated, and statistical information does not personally identify you, we may use or disclose such information for any purpose.
Access to Your Information
Except as otherwise specified, you can access your Personally Identifiable Information to update or correct factual errors by sending us an email at firstname.lastname@example.org. To protect your privacy and security, we may take reasonable steps to verify your identity before granting access or making corrections. If you decide that you no longer want to use the Services and want us to delete your information, please contact us by sending an email to email@example.com. To enable you to continue to use the Services, unless you notify us and request that your information be deleted, your information will be retained for as long as the Services are available.
The Services are not directed at children, and we do not knowingly collect Personal Information from children under the age of 13. If a child provides us with this type of information, please contact us to let us know and to have the account deactivated by sending us an email at firstname.lastname@example.org.
Special Notice to California Residents
California residents have rights regarding access to, sale of, and deletion of “personal information.” If you are a California resident, and you would like to exercise your rights, please send an email email@example.com. Datavant will not discriminate against you for exercising any of your legal rights.
If you have any questions or concerns, email us at firstname.lastname@example.org.