Privacy Policy

Effective date: April 21, 2020

The COVID-19 RESEARCH DATABASE (the “Research Database”) is a free resource open to the global research and public health community that has been created by Datavant, Inc. (“Datavant”) and its Research Database partners in an attempt to provide real-world data to individuals conducting academic, scientific, and medical research and public health activities concerning COVID-19.

Datavant recognizes the importance of protecting your privacy and the privacy of the information contained in the Research Database. This Privacy Policy discloses the information-gathering and dissemination practices for this website (the “Website”) and for use of the Research Database (together, the “Services”).
By using the Services, you agree to be bound by the terms and conditions of this Privacy Policy. If you do not agree with the terms of this Privacy Policy, you should not use the Services.

Information We Collect

Personally Identifiable Information
We collect and store Personally Identifiable Information that you provide voluntarily when using the Services. Personally Identifiable Information is information that can identify you as a specific individual, such as your full name, postal address, email address, and/or telephone number. For example, you might provide us personally identifiable information by submitting an application for admission to use the Research Database or by emailing us. You are responsible for providing accurate and complete information when you provide such information to us.

Personally Identifiable Information does not include de-identified, aggregated, or statistical information from which identification of you cannot be done.

De-identified, Aggregated, and Statistical Information

When you visit any page on this Website or via the Research Database, we or our contracted service providers may use a program that monitors and evaluates the traffic. It automatically records every visitor’s host, domain name, pages visited, length of user session, browser type, and/or IP address. This information does not contain Personally Identifiable Information. We use this information to find out how many people visit the Services to determine the areas of greatest interest on the Services and to make improvements to the Services.

Cookies

As with many other sites, the Services may use cookies or other technologies to help us process your inquiries or requests, and/or to analyze your visiting patterns. Cookies, by themselves, will not be used by Datavant to disclose your individual identity. Cookies identify your browser, but not you, to our servers when you visit this Website or use the Services. In limited instances, however, such as when you submit an application for admission to the Research Database, cookies may be associated with the Personally Identifiable Information we collect. If we do combine any cookies with Personally Identifiable Information, the combined information will be treated by us as Personally Identifiable Information in accordance with this Privacy Policy.

If you want to disable the use of cookies or remove them at any time from your computer, you can disable or delete them using your browser (consult your browser’s help menu to learn how to delete cookies), however, if you do that, you may not be able to access certain information if you have disabled cookies. Please note that this Website currently does not have a mechanism to recognize the various web browser Do Not Track signals.
We may also collect data by using pixel tags, web beacons, clear GIFs or similar means (collectively, pixel tags) that allow us to know when you visit this Website or use the Services.Through pixel tags, we obtain non-personally identifiable information or statistical information (i.e., your IP address, the areas of this Website you visit, your operating system, your browser version and the URL you came from), which can be used to enhance your experience and, when aggregated with other visitor data, to understand traffic patterns on the Services.

How We Use Your Personally Identifiable Information

We may use your Personally Identifiable Information received through this Website to: reviewing and possibly approving your study submission approval, and, if approved, provisioning access to the research database and communicating with you regarding study publication

  • Review your application for use of the Research Database
  • Contact you in connection with your application for access to or subsequent use of the Research Database
  • Respond to questions or inquiries you have about the Services
  • Provide you with access to the Services
  • Communicate with you regarding the publication of the study you are conducting through your use of the Services
  • Improve this Website and the Research Database
  • Customize the content and/or format of the pages you visit
  • Ask you to participate in brief surveys; and/or
  • Generate aggregate statistical studies and conduct research related to the Services and the use of this Website.

Disclosure of your Personally Identifiable Information

We may disclose Personally Identifiable Information we have received through the Services to certain service providers who assist us with fulfilling the Services you have requested. For example, we may disclose your Personally Identifiable Information to our partner, Health Care Cost Institute, which is coordinating the application and admission process for access to the Research Database, and to our partner, Medidata, who is hosting the Research Database and providing access to it. These service providers agree not to use your Personally Identifiable Information for any purposes other than the ones described in this Privacy Policy.

We may also disclose Personally Identifiable Information collected through the use of these Services in accordance with applicable law, to assert or defend our rights and property, to prevent harm to others, or in response to legal processes such as subpoenas.

Because de-identified, aggregated, and statistical information does not personally identify you, we may use or disclose such information for any purpose.

Access to Your Information

Except as otherwise specified, you can access your Personally Identifiable Information to update or correct factual errors by sending us an email at contact@covid19researchdatabase.org. To protect your privacy and security, we may take reasonable steps to verify your identity before granting access or making corrections. If you decide that you no longer want to use the Services and want us to delete your information, please contact us by sending an email to contact@covid19researchdatabase.org. To enable you to continue to use the Services, unless you notify us and request that your information be deleted, your information will be retained for as long as the Services are available.

Security

Datavant is utilizing a number of administrative, physical, and technical safeguards to help prevent unauthorized access to or misuse of your Personally Identifiable Information. As with any website or service, we cannot guarantee that your information will never be disclosed in a manner inconsistent with this Privacy Policy (for example, as a result of unauthorized acts by third parties that violate applicable law or relevant Web policies). To the extent we become aware of any such situation, we will comply with applicable laws in, for example, providing notice.

Children

The Services are not directed at children, and we do not knowingly collect Personal Information from children under the age of 13. If a child provides us with this type of information, please contact us to let us know and to have the account deactivated by sending us an email at contact@covid19researchdatabase.org.

Special Notice to California Residents

California residents have rights regarding access to, sale of, and deletion of “personal information.” If you are a California resident, and you would like to exercise your rights, please send an email tocontact@covid19researchdatabase.org. Datavant will not discriminate against you for exercising any of your legal rights.

Changes

Datavant reserves the right to change this Privacy Policy. Any data previously collected will be subject to the Privacy Policy changes as of the effective date of this policy, and your use of the Services following the posting of changes to this Privacy Policy shall constitute your acceptance of the revised Privacy Policy.

Contact Information

If you have any questions or concerns, email us at contact@covid19researchdatabase.org.